on : Ex's and the Final Blog Here

I have a pretty good relationship with all of my ex's, and this makes me happy for the most part. Sometimes, something will happen which causes me to wonder if two people who are more than friends can ever be 'just friends' for real, or if aspects and feelings and thoughts always linger and sometimes bubble to the surface always. Either way, maybe it's a topic for another day.

But, my ex, whom I have never seen drunk and who is a very thoughtful person, called me last night to tell me Happy New Year. and he was drunk, like slurring drunk. And he had left a woman upstairs and come downstairs to call me. I appreciated that he thought of me and appreciate that he reached out and expressed that. At the same time, I felt kind of badly for the woman upstairs and felt kind of odd hearing him so altered. It has really had me thinking a lot today about a lot of different things. I don't know how people walk away from people that they have loved and shared intimate times with, because I haven't really experienced it. I've managed to be friendly or friends with all of the people whom I have loved...for the most part, we care about each other and that didn't change because the relationship didn't work.

But then I wonder if that's even healthy. Should I be carrying around all of this past with me, letting these people occupy space in my heart when we don't occupy space in each other's lives any longer? Or should I be severing these ties and staying light and fresh and free for the next chapters in my life. I honestly can't imagine my life without the people who have made it better. But I can't imagine my life continuing on like this, so maybe I have to change what I can imagine? I'm just not sure.

Anyway, new blog for the new year and, hopefully, new approach to life will be at ... http://lhoprovatosullamiapelle.blogspot.com/


tug of war | only one more procedure this year!

admitting failure is hard. admitting that something that you're involved in is failing is such a challenge. especially when it's failing not because of low energy, but because no one is just taking it. there's tons of tug of war, plenty of offers and acceptance, but no one wants to forward the offers. or finally one will move to forward things and the other blocks. tug of war is exhausting. and all that i'm getting is tired.

it's a big world. a lot of struggle. a lot of hard, hard moments. i want to be on the same side as the people in my life, working to pull each other away from the bullshit together rather than the tug of war. i'm tired of only getting tired.

i'm totally ready to find the joy in my life. i think some things are sinking in. i'm starting to listen when i hear certainty inside myself again. it's been a long time of standing on this precipice...scared and fragile and hopeless. i'm ready for the next step. i think i finally know what it is. i think that i'm going to be okay, and then better than okay, very soon.

only one more procedure left this year!!! (and very soon, once again i can't sleep. last night was the same and a couple of nights before that :/)...but anyway, only one more!!! yay!!! then no more procedures in 2007! i'm so ready to say goodbye to this year!!

it's almost here...


i don't have it in me for the phone lately.

honestly, i know that my voicemail is full. i've got 68 unreturned text messages. the voicemails are not checked. inbox is stockpiling and i've, honestly, no intention of getting to it right now.

i really just cannot deal with the prospect of saying the same thing countless times, answering the same questions, making the same explanations, hearing the same unspoken heaviness on the other end. truthfully, i'm tired. lately, i think the same things a lot...i think about how i don't want to go to the doctor/take these hormones/change these hormones, i think about how i want to hang out with someone who gets excited to see me, i think about how i want - maybe more close, i need - to get out of this lane that i'm in and travel, be elsewhere, experience newness again. i think about how i want someone to make me breakfast. i think about when i was sick the first time and things would fall apart...i think about how in that time i would start to lose it and break some, and he would come to me and grab me and hold me so tight. he would literally try to absorb what was happening, what was coursing through me, and would hold me so tight and so close until i was past anger, past frustration, past rage, past the bullshit of the moment, and had arrived safely at that moment. the one in which i was getting a hug and someone cared beyond the hug and maybe i didn't have forever, but i had those next few hours at least, so why not make them good? i think about how i want that again.

and a lot, i think about all of the deconstruction that has happened since then. how many times i have fallen apart and tried to put myself back together. how many times i have fallen apart from the effort. i think about all of the effort that it has taken to get here, and all of the effort that it takes not to let the effort show. i think that i probably shouldn't let myself fall apart anymore, because once you do that it just keeps happening. it's time to work on being strong now.

anyway...that was just a glimpse into me right now, because i know that i've been playing my cards pretty close to my chest for a minute.

if i were to call you back, or text you back, or check my email and reply, this is what i would say...
thank you. i hope that your holidays were/are great too. yes, i spoke to my doctor{s}. yes the biopsy results are back. i'm having two procedures back to back, one the first thing tomorrow morning and one the next day. yes, i'm slightly worried, but i've been starting/am starting new meds and am making promises to do what they want me to do at the beginning of the year. i'm going to be fine behind these procedures, it's just the mental heaviness of getting there...not literally, just figuratively getting to that point. like i said, i'm tired of doctors and clinical settings. i wish that the next part could start now. i'm ready for the next part.

so, i would apologize for the lack of contact, but right now i don't have a heartfelt apology in me. it's just been what it is, getting to these appointments and what is on the other side of them. soon, i'll be back. soon. be well.


if i could fly away

i wouldn't come back no more.
i'd turn around just to see it all for the last time.
it wouldn't be easy.
but i'd go.


there is no fairy tale | trust.

i went to a movie screening tonight, of a movie i don't really want to put here to be forever known as one i viewed in the theatre before it even was released. it's not a movie that i'd have paid to see. we'll just say that.

and it struck me that movies play a huge role in why people find relationships so difficult. movies portray 'true love' as what is felt if a man is willing to go against stereotype and convention to be 'romantic', 'emotive', to sing and dance to you, to profess his love and perform a Grand Gesture.

and i feel like a lot (not all) of women absorb this message and eat it up. they decide that this is how their significant other *should* treat them, or how their future mate needs to treat them. and they put so much value on this showy stuff that someone & something perfectly good for them will be tossed aside because it isn't the fairy tale. people want the happy ending.

the thing, to me, is that the happy ending is just where the story stops being told. fact of the matter is, this is a bumpy ride, this Life. it's rough sometimes, there are ups and downs, some of them horrendous downs, and no one gets out alive. someone is always going to have to die before someone else. someone is always going to have to be the strong one when shit is happening, someone is going to have to be the rock, someone is going to have to be the one who adapts more readily to flaws and issues. it's the way of the beast where interactions and interpersonal relationships are concerned. some truly horrid shit might happen to the strong one which reduces their ability to be strong, and the other person is either going to learn to soldier on without being spoiled, without being treated like a prince/princess, without all the romance and grand gestures, or they decide that what they want is more important than any other thing and they walk away.

but, to me, that's not love. to me, love is not something which is solidified when times are good and the gestures and the romance are there, when the sex is constant and great and the times had are always great. to me, love is solidified when things are mundane, common, and not so great. to me, love settles when someone can acknowledge that i talk too much and my sleep schedule is fuct and i'm outspoken and sassy, but place value in my myriad of good qualities which they respect and admire beyond those...and let the positive be the focus. love, for me, is solidified when i care about how he eats, how motivated he is to find the joy in his life, how much he cares about politics and knowledge, but i care more about him as the person that i have chosen to love more than any of those single things and so i can choose not to nag or snark him about things he does that i don't agree with.

and i think that a kind of love that maybe alters us is built in times of struggle, hardship and difficulty. for instance, when i got sick again not so long ago, i had been dating someone new-ish. i knew that i liked him, that he intrigued me, challenged me, made me laugh, made me comfortable, made me question things and pushed me to question myself and grow. but, i didn't know love for him then. and then, the words from the doctor came. and i expected that he would run, and run far and fast. treatments which put a young woman in hormone suppression, menopause, and do all of the physical/emotional/mood altering things which mine did would probably cause someone years into something to pause and think 'i did not sign up for this.' so, i was not expecting someone whom i had only had in my life for less than a year to absorb it and still care.

this person, however, stepped up to be what i needed more than anything right then...he stepped up to be a good friend. he took me to doctor's appointments and treatments, he hung out with me when i was so sick that all that i could do was lay and look in the direction of the t.v. & he took me for soup at weird times and brought washcloths to me when i was later throwing up that soup. when the hot flashes took over, he showed up with a fan and tolerated frigid temperatures in which only i could be comfortable to hang out with me. he endured raging hormones and constant mood swings, neediness and pushing away, meltdowns and the physical changes, and while he wasn't perfect in how he handled those things always, he was good for me far more than he could ever even know, and i grew to love him so much.

in retrospect, i have been awed by him. at the time, i wasn't able to see clearly what it was like for someone in that position. i wasn't able to think about what it must be like for someone to watch a person that they care about be ravaged by something so beyond their ability to fix, or even attempt to fix. i wasn't able to process how difficult it must be to watch all of these things happen to a person that you like - both the physical things and the ways that it altered my personality and my moods - and know that there is a chance that they could die at the end of this. i can't imagine how difficult it was to make a decision to keep being a friend to this person, which means that feelings continue to grow, and to know that there is such an uncertainty while doing so. to watch them hurt and need and lash out and not be able to do anything but absorb it.

all that i could do, all that i could think about, in that time period, was ME. all that i could do was continue on every day, muster the courage and the strength to endure it and try to hope. i couldn't see how hard my moods and neediness and pain and hunger and desire-for-something-certain were to be on the receiving end of. i couldn't see how much my pain hurt the people close to me, because my pain was all consuming. my anger was big. my resentment was big. my moods were shitty. and i wanted the people that i loved to help me to carry something which only i could shoulder. i wanted constantness because there was so much inconstancy. i wanted promises because so much wasn't promised. i wanted to be comforted and told that *he* would be there because i wasn't sure that i would be. and in the face of all of these needs and wants and desires, he was able to be honest with me about what he could and couldn't do and give, even though there probably wasn't very much of anything which could have satisfied me in that time period...and so i could not be pleased.

i realize now that no matter what happens to me going forward in this life, i will always love this person. i will always want for him happiness and health and every good thing. my love for him is something which was cemented by all of the things that he didn't do and not by the things he did do. i didn't grow to love him because he brought me flowers and candy, because he said the right thing all of the time, because he took me to romantic dinners or bought me trinkets, because he didn't do those things. i love him because he didn't turn away from the bullshit, he didn't endure a crying fit or a screaming episode or a harsh tone and walk away. he didn't stop being my friend because things got tough for me and so for him by proxy. he didn't wash his hands of me because this wasn't what he signed up for. he didn't tell me to fuck off when i called at 3 a.m. and asked him to take me to the emergency room or to get soup after being a total bitch to him earlier. he didn't write me off because i wasn't able to be perfect in the face of some pretty not perfect shit.

i love him and hope that he is always a part of my life for how much i appreciate all of this now. i regret that so much time was 'wasted' during my time of hardship, and that so much of the tone of how we interact was set during a time when i was so not my true self, but i do not regret keeping my heart open to him or growing to love him. and i recognize that hoping for the fairy tale may be what gets some people through, but i know that for me, i'll take someone who will bring a fan and some soup and sit with me during hospital visits over someone who gives flowers and jewelry but can't handle the less than perfect times any day. for me, there is no fairy tale. there is only this life, and it is hard just as much as it is good, and it is flawed and dirty and there are often tears, but it is so amazing to get to live it every day. and to have people who will be there in the valleys just as tough as they are at the peaks.

and for this amazing story of friendship, there have been far more of those who didn't maintain. who couldn't, for whatever reason, be there until the end. like i said, it is hard to care about someone who is changing so much, who is so affected by external and internal stimuli every day, whose strength and hope and humor fades as her body diminishes. it must be so incredibly hard, i can't imagine. so, losing friends as i did during that time period, my ability to trust took a hit. i started closing myself off to most people, because if i couldn't trust the people who had been a part of my life for so long to be there, why trust new people enough to let them in? or why trust those who were there to stay? but what i've decided to embrace is this...

people aren't going to earn it. this measure of trust that i hold back which keeps me from being able to fully give myself to friends or lovers or whomever, no one is going to earn that. they can't. i have to give it, as a gift, both for myself and for the people that i care about. so, i'm going to try that. the space and love and happiness that i want in my life, i'm going to try to give it to those whom i care about and trust that they will treat it with respect. i am going to try to trust that when people make mistakes which hurt me, that it isn't a reflection of how they feel about me, but rather their own internal issue which has nothing to do with me. i am going to try to trust and love without expectation.

and i am going to try to be as good a friend to the people that i enjoy as i am lucky enough to have enjoyed. i am going to try to trust enough to know that when someone isn't behaving as i think they should to me, that it isn't about how they perceive my worth but more about their desires and capabilities. and i am going to try to trust the universe enough to believe that my needs will be met even if all of my desires aren't fulfilled, and that it is for the best for me in ways which i can't see right now.


you've got to believe in something - why not believe in me?

• respond/react. i just did something i so should not have done for all of the wrong reasons.

• i know that we're all here for a reason on a particular path, but i certainly don't feel like i'm on the right one right now. this detour has been hellacious. i need more determination/dedication/motivation.

• the end of the year is going to mark the end of Digital Cashmere. if you want to get at me regarding where the new homebase will be, feel free.

• it was good to be with old friends.

• even when we disagree, and freedom reaches out a hand to me, i know that i would never want to be without your company. and i mean that totally.

• postcard from s. africa received...it is the same and it is so completely different. soon. i miss it too. you know how.


:/ | :| | :*)

first : you should really read this http://posting.triggerstreet.com/gyrobase/Submission?oid=oid%3A1264285 by my friend Adam and comment/leave feedback/rate it. he's good. i want good things for him.

beyond that, i'm tired and sore and have to have another stupid procedure on monday, so i'm not really feeling like blogging too much lately. the one thing i do have to say is this : you can experience moments of true generosity of spirit and positivity by others, but you have to be willing to be the person who will sit and talk to the guy next to them. you have to be willing to put your hand out there first...to reach out.

that's all that i have right now. i hope that your end of year isn't too stressful.


love isn't something we feel, it's something we do

even divided
our connection
was multiplied
by love
infinite (i believed)
in value

when you sighed
my chest heaved
when you slept
i was riveted
by waking dreams

you, dear one,
are closer to me
than my skin

i feel your silence
echoing in the hollow
chamber where my heart
used to live

i know your heartache
and losses, the ones
past and future and
when you cry
my throat tightens
and i shed your
restrained tears

you, confused one,
are closer to me
than my skin

i know the things
you think you lost
and threw away
and the dreams
you think will never
reach fruition

when you ache
silently yet deeply
my being quivers
and i close my eyes
breathing unspoken love
to your soul

love isn't something
that we feel
it's something
that we do

you, hurt one,
are closer to me
than my own skin


epiphanies in the gym.

so, i'm working out tonight (last night now?), on the elliptical machine just doing my thing and watching monday night football, when i start to look around at all of the people surrounding me.

Monday night is the most intense night to go to the gym. everyone has restarted their promise to themselves to get in the gym and go hard. the fresh decisions made, the machines are packed, the weight room is packed, there are mad dudes playing basketball on the courts, everyone is giving it their best. by friday, there's no one there and it's easy to follow the trajectory of desire vs habit.

i see so many different kinds of people. beyond race, beyond sex, beyond physical descriptors, i see a huge variety of people. i see those who wear their discomfort with who they are on their faces. i see those who are trying so hard to have one area that they are fully in control of...damaging their bodies in order to be a master of at least some domain. i see those who are clearly happy in what they have sculpted, the ease with which they walk and smile and laugh and hit on others. and i see the truly miserable. those who feel that they are fat/ugly/not *whatever* enough/too *whatever*. they are so difficult to see.

and i realize that what i've been struggling to find is right in front of me.

you see, i've been looking for the art of being easy again.

i used to be easy. i used to be carefree. i used to be so much more able to just enjoy the journey instead of worrying about the steps along the way.

in that time, i was so comfortable in my own skin. i was not perfect...so far from it...but i was truly inspired in my life and happy for the most part. the things which were important to me...friends, live music, being able to go for walks in the park, travel, being good at what i did...i had pulled all those things close to me. i had filled my life with things and people that i enjoyed and loved. and i was able to appreciate the good in my life every day, because so rarely did the not good even enter in any longer. a huge accomplishment for someone whose early life had been full of the not good.

and then...then disease came. discomfort. struggle. the realization that my life wasn't this never-ending promise of tomorrows and that not every dream was going to come true. typing out medical directives and will & testaments. moving assets into other people's names. surgery/procedure/treatment/surgery/surgery/surgery/treatment/procedure. dis-ease.

when every day you have to think about how many you might have left, and every day you are faced with medicines which make you a different kind of sick to fight the sickness which threatens you so intensely, you become someone who loses touch with being easy.

on television and in the movies, they would have you believe that when we face life threatening illness and its treatment, and survive, that we arrive on the other side of that detour just happy to have arrived. that we lose ourselves in laughter and love and kindness and take every moment with a breezy whimsy which defies belief.

it isn't true. for a lot of us, arriving somewhere so far from our original destination...broke, physically altered, hyper aware of our mortality, reliant upon medications and doctors and tests, carrying within us the knowledge that we are now forever marked and possibly being stalked by a ravaging criminal which likes to return to the same host, having lost so much - friendships, time, the ability to reproduce, ease, a certain naivete, calcium, vitamins, youthful appearance - there is a struggle upon that arrival.

you want to be happy. just to be here. just to have arrived *somewhere*. but at the same time, you're so devastated by so much. and there is so much to reconcile now. and you go through so many phases...like adolescence all over again, almost.

imagine that you have lived your whole life inside a tire...25, 30, 50 years, and have created in that time period your ideas, your beliefs, your belongings, your friends, your knowledge base, your career...all that you hold dear, and all of these things are the air inside your tire-life. keeping it balanced and full and going.

now imagine that something horrible happens to your tire...but it isn't something which happens suddenly and it isn't something which you can fix or control. instead, it is a slow, steady leak, which you can only live in the center of as you run back and forth to every tire repair person that you can find and beg them to fix it, to save this tire because it's the only one you can have. once that air, and everything that it holds, is gone...there are no replacements.

and so, as this happening becomes a daily issue, and you watch moment by moment as the life which you have built seeps out into the ether, your life starts to fill up with all of the things which the experts are putting into the hole to try to salvage your tire. but, it isn't anything even remotely close to that which it is replacing. it is poison and last resorts and final straws, it is big words, it is debt, it is struggle, it is immeasurable and inexplainable pain, it is loneliness, it is heartache, it is despair, it is hope, it is not enough hope, it is too much hope, it is stress, it is fear...

and these things which have to go here in order to even have a fighting chance, they begin to displace some of the things which haven't been let out yet. friends, dreams, hopes, ideals, self-perception...they all begin to be moved aside so that you can deal with this crisis every day. you begin to and then continue to have to leave a little bit of the life which you have known behind in order to have a chance of the life which you hope for, until all of the little bits add up.

then suddenly, it is months or years later, and what you have struggled for is here. you survive. things settle down somewhat. and you have a chance to breathe again. and you look around, survey the landscape which you have arrived on, and realize that you have no fucking idea where you are, or even who you are, any longer.

you realize that this life that you have fought so hard to maintain isn't familiar at all any more. you realize that the people whom you thought were going to always be there have moved on. you realize that the career that you were building is actually just a noose. you realize that the body which you have come to know and rely upon and be comfortable in is a potential enemy. you realize that everything that you have saved and worked for is gone, and you are starting all over again. you realize that time is short and your pain tolerance is high, but that doesn't make any of it any easier.

mostly, you realize that you are new to the world all over again...that this suffering and fighting to get here has changed you irrevocably. and you look at those who have been still living their lives during this time period and hear them tell you of your strength and your fortune and your tenacity, and you realize that they don't get it.

you understand, fundamentally, that the healing feels as if it is going to kill you. in a very short time period, you have watched everything that you have designed and built and become be tossed out. and you get it...that the strength that it took to hold it together and tolerate the direction of those who are trying to save you was nothing compared to the strength that it is going to take to put everything back together again. to rebuild. to remaster. to replan. to reorganize.

and you wonder if you have the strength, or the courage, or even the desire, to set about on the path to 'getting there'. it took 30 years to get there before. it took courage and effort and, i believe, youth. in your youth, you are so willing to meet failure and start again, to be flexible, to learn lessons from heartache and keep going in the quest for the prize.

somehow, age changes our ability to tolerate uncertainty. it is how we all become our ancestors over and over again...how we start out so desirous of making change and end up another cog in the machine. it is how we start out liberal and dreaming and end up middle of the road and getting by.

so, when faced day by day with these dual emotions...the happiness at being here but the sheer terror at how fucked up here is, you go through all of these stages of processing everything. elation, uncertainty, fear, depression, anxiety, feeling as if it is truly impossible.

and tonight, i realized that we make it so hard for each other. we see each other through the veil of our experiences, our expectations...both reasonable and unreasonable, our desires, our over-reaching. and we see in those around us our own failures. our unhappiness. our shortcomings. and we place that perception onto them and then judge them almost as harshly as we judge ourselves.

i realized that i've been seeing the world around me and other people with this desperation and desire that i've been full of.

you see, i've been desperate to start actually living my life again. desperate to be out from under the monitoring eye of the health care practitioners, desperate to see and feel and know and do all of the things that i had ever hoped for...and quickly. before *it* comes back or any other unthinkable thing happens which ends this opportunity that i've been given to keep going. this desperation has incorporated so many desires...there are so many things that i've desired to have and do and experience.

because i don't have any other option, i've accepted that which has been taken away from me - the things that i can't do. i can't bear my own children. okay. i can't not take these medications. okay. i can't sleep through the night without hot flashes. okay. i can't go without bone scans and body scans and ultrasounds. okay. i can't ungray my hair or take the bone loss away. okay. i can't get that time back. okay. i can't undo the staggering loss or the heart wrenching realizations. okay.

and so, this has left the 'i cans'. what is there that i can do that i want to do? and there has been love...i can still love. knowledge...i can still pursue knowledge. knowledge of self. knowledge of the world around me. knowledge of others. knowledge of my place in the world. i can still try. i can still laugh. i can still dream. i can still seduce. i can still entice. i can still cook. i can still feel pleasure.

because i have felt that i am racing an unseen second hand on a giant universal clock, i have wanted everything that i can have and do NOW. i have wanted this love to be reciprocated as intensely as i can give it because 'what if?'. what if there isn't unlimited time to go patiently? i have wanted to reclaim those days when my life was made complete by books and music and not having a strict schedule because what if? what if this is my chance to be happy living for me instead of living for the idea of what i'm supposed to do and want and be? i have wanted to go everywhere and do everything and be everyone and livelivelive because what if? what if the answers are out there and not right here?

and tonight i realized that everyone is racing something. we're all struggling, not quite happy, not quite satisfied, not quite *whatever*. we're all trying to get as much in as possible. we're all trying to find our own happiness. we're all using our own coping mechanisms...even though they may not make sense to others. we're all coping...using sex or drugs or exercise or food or whatever it is to fill the voids that life is creating every day.

and being easy can be easy again. i just need to understand that 'being easy' has to be about me. i can't include everyone else in my expectations or my desires or my limits.

everyone needs room to be who they are. everyone needs clearance to find comfort in the things which give it to them. everyone needs love without expectation. everyone needs all of the things which i have found that i need. i'm not special...my sickness, my struggle, my setbacks, my suffering...none of these things make me any more special than anyone else, or any more deserving of my desires.

i need soft eyes and to reclaim what i knew for all those years...that being alone in the world doesn't limit me. that i can do and be and see anything i want to at any time, and that being alone means i don't need permission or to feel bad for following my heart's desires.

in order to survive, i had to surrender control for the first time in my life. i had to be told all of the time...what to eat, what to drink, what to indulge in, what to smoke, what medicines to take and when, when to get treatment, when to rest, when to cry, what doctors to see, what to hope for, what to expect, when not to get my expectations up, when not to push, when not to hold back, when to get undressed, when to let strangers touch me.

giving up control seemed like the most difficult thing that i would ever face. but i am learning that it is getting it back which is the challenge. learning that it is okay to set my own boundaries and my own guidelines again. learning that it wasn't my fault that i got sick. i've been scared to take control back...letting myself float out there in the world and hoping that someone would see me here, floundering and low on strength and terrified, and step in and take control. that someone would step up beside me and promise to be here with me and hold my hand to keep me steady and help me find my place in the world again.

but there isn't any ease in life like that. and you can't be easy when there's no ease. ease comes when we're being true to who and what we are, even when we aren't our best. for the first time in a very long time, i can see the path to ease again...which means that i'm once again on my own path. and i know that detours will happen, but if i can have patience with myself and the world around me, i can find my way back to where i need to be.